Trusted Practitioners + Groups

Santa Fe/Albuquerque Providers & Remote Specialists

Most of my contacts are in Santa Fe--please feel free to make suggestions as to who is particularly good throughout the state and in neighboring states: sarah@lightspiritstudio.com

Cranial & European Osteopaths

• Dr. Onik

• Musculoskeletal Specialists--This group is not made up of osteopaths but of massage therapists whose work is heavily sourced from European Osteopathic techniques. Their work is incisive. I send many clients here--particularly those with treatment-resistant or complex conditions in which manual work may be helpful. The group is not in Santa Fe but Los Alamos--it's worth the drive and so worth including here. They will open a second clinic and school in Santa Fe in 2025.

Insurance-Based Primary Care

• Northern New Mexico Family and Functional Medicine--a holistic viewpoint promoting functional nutrition.

Altitude & Performance Medicine

• Javier Seufferheld, MD-- javiseufferheld@gmail.com, 217-250-7050--a conventional medical specialist trained in Altitude Medicine in Argentina and working within a holistic framework gained from postgraduate training in biological, Ayurvedic, and herbal medicines. His work involves helping clients to increase their capacity to manage oxidative stress and keep mitochondria healthy through meganutrition. I'm excited to see how his therapies may work for those whose chronic pain or other symptoms have worsened with altitude--a story I've often heard from clients with Ehlers-Danlos Syndrome or hypermobility. I'll add contact info as soon as I've got the correct stuff. Javier is at present working under his Argentinian license but working on getting a US based license as well.

Functional & Investigative Medicine

• 360 Medicine--focused on the whole health picture and on the issues that are hard to track down in most care. The practice is typically full but it may be worth a try getting in if his kind of medicine is what you need--referrals and shared networks can help

• Forouz Jowkar, PA--505-424-9172--integrative, investigative work in internal medicine

• Gina Ortiz, PA-C--integrative physician assistant--a couple of my current clients who are problematically hypermobile are appreciating working with her. She is familiar with EDS and seemingly with gut health issues that can come along with it. Is in training with Russ Canfield, MD.

• Eric Grasser, MD--concierge practice in Ayurvedic and Western medicine

Women's Health

• Hannah Rikoon, ND--505-594-3125--focused on women's health, fertility, and hormonal balance; works a lot with gut repair and gut health; EDS, hypermobility, and MCAS aware--sliding scale, no insurance billing

Allergy & Immunology

• Corey Clay, MD, PhD--histamine intolerance, mast cell activation syndrome, allergies

TMJ & Speech Language Pathology

• Melissa Wilson,1 M.Ed., CCC/SLP, COM--orofacial myology, TMJ, speech language pathology

Manual Lymphatic Drainage

• Julie Strassburger, LMT--manual lymphatic drainage, craniosacral therapy

• Lily O'Leary--manual lymphatic drainage, myofascial and other manual therapies

• Deana Benjamin, PT--Christus--hypermobility aware

• See also Jean Anne Zollars (Physical Therapists)

Nutrition

• Amadea Morningstar, MA, RPE, RYT--Ayurvedic nutrition

PRP, PRF, Prolotherapy

• Jonas Skardis, DOM--800-702-6676–PRP & prolotherapy--EDS and hypermobility aware

• DP Khalsa--DO–PRF--a doctor previously working at his clinic (now out of state) was listed as serving the EDS population, so odds are good that DP is at least aware of EDS and he may have some alternate referrals to offer

Massage Therapists

• Michelle Diggs, LMT--707-205-5202--wellness massage, pregnancy massage--bills Cigna

• T.C. Gritt, LMT--505-699-2689--wellness & pregnancy massage, no insurance billing

• Katia Van Horn, LMT--katiavanhorn@gmail.com--craniosacral therapy

• David Lang, LMT--very skilled working with children and complex cases, palliative care

Doctors of Oriental Medicine

• Jason Hao,1 DOM--a neuroacupuncturist with excellent reviews from quite a few clients

• Kelly Frith, DOM--histamine intolerance, fertility, herbal medicine--bills Cigna

• Mita Khalsa, DOM--505-690-0605--Acupuncturist. No insurance billing except with Motor Vehicle Collisions cases

• Mavrick Lobe, DOM1 505-577-1588–PRP/prolotherapy

Personal Training and Exercise Instructors

• virtual hypermobility-focused training groups from a hypermobile, MCAS aware personal trainer

• Kevin Bowen, Owner/Director, Pilates Teacher--a hypermobile client is very happy working with him and says that he's great at adapting exercises for special needs

• Serina Carrasco--Feldenkrais practitioner--Santa Fe--EDS aware

Physical Therapists

• Katie Dewar, PT, DPT, PRPC--La Hoya Health, 561-644-3738--pelvic floor physical therapy in Santa Fe (Aldea). Hypermobility focused provider; organizes a local interdisciplinary provider meetup and journal club around hypermobility and other underserved health issues.

• Method Physical Therapy, 505-218-9740.--a pelvic floor focused physical therapy clinic in Santa Fe and Albuquerque, highly aware of EDS and hypermobility--no insurance billing

• Lauren Rose,1 PT--visceral work, pelvic floor work--no insurance billing

• Jean Anne Zollars, PT--pediatric only, manual lymphatic drainage, visceral and neural manipulation, pelvic floor work

Naprapaths & Chiropractors

• Denise Gabaldon-Thronas, DN--naprapathy, nutrition, works very well with hypermobility. Fairly long waits to see her, but for good reason.

• Travis Mason, DN, DC, MS--naprapathy and chiropractic with a gentle touch

Integrative Care

• UNM Center for Life, (Albuquerque)--505-925-7464--a high quality integrative care clinic

Concierge Emergency Medicine

• David Rosen, MD--EDS aware

Non-Local and Remote Providers

• Center for Multisystem Disease--Denver, CO

• Mast Cell Masterminds--this list of providers dedicated to investigating Mast Cell Activation Syndrome is filled with names I've come to see as truly impressive--people who have made a huge difference to me through their published work, public lectures, and advocacy

• Centers and Networks of Excellence for EDS and Hypermobility diagnosis and care are listed here by the EDS Society

• Hypermobility Clinic at the Fascia Institute, New Orleans, LA

• Monica Robbins, LMSW--505-577-1808--remote mental health counseling--bills insurance.

• Sophia Health Institute--WA--a holistic integrative clinic working with chronic Lyme and other underserved diagnoses

• AIM Center for Personalized Medicine--a specialty clinic for chronic Lyme disease, mast cell disorders, and complex illness. Is able to consult with local doctors and help guide local care.

• Nour Zibdeh, Integrative Dietitian and Nutritionist with success stories for IBS, histamine intolerance, food sensitivities, etc. plus management of autoimmune disorders

• Byron Herbalist, herbal approaches for healing the gut and balancing the microbiome

• Flatiron Functional Medicine, Boulder, CO

• Redo Nutrition--"functional nutrition approach for diabetes and insulin resistance associated conditions, autoimmune disorders, gastrointestinal dysfunction, identifying food sensitivities, histamine intolerance and mast cell activation syndrome (MCAS), POTS/dysautonomia, and other issues."--telehealth

Support and Information Groups

Local

• Santa Fe Hypermobility Advocacy & Resource Group, Sarah Johnson, 505-310-0662, sarah@lightspiritstudio.com--We're a group of around 50 patients and healthcare providers with diagnosed or undiagnosed hypermobility and related conditions and/or expertise in managing them. We aim for roughly monthly digital or in-person meetings--steadiness and attendance will grow. We're looking to build a digital platform in which group members can connect between sessions. Occasional class series are held in collaboration with specialized providers. We also actively advocate to improve quality and breadth of care for EDS, HSD, MCAS, and related conditions in northern New Mexico; newcomers are welcome to advocacy projects underway or in planning.

• Northern NM Interdisciplinary Provider Meetup and Journal Club--Katie Dewar, 505-615-9381--a new and growing group of providers dedicated to improving care for conditions often poorly met at present, centrally, hypermobility. Condition specific trainings, regular meetings, and a digital home for sharing exceptional material are in the works. Healthcare providers from any conventional or complementary modality are welcome.

• EDS New Mexico (Facebook Group)--group admins maintain a much larger list of EDS and HSD-knowledgable providers, tips on managing care, and EDS, HSD, and disability related resources in New Mexico

Non-Local and Remote

• The Ehlers Danlos Society: Information, support groups, colloquia

• Mast Cell Action: Online support and resources

• The Mast Cell Disease Society

• Mast Cell Masterminds--physician resources (lists exceptionally dedicated mast cell disease care providers)

• American Initiative in Mast Cell Diseases

• Chiari EDS Center at SUNY South Nassau--(list of current IRB studies)

• American Autonomic Society

• The Peripheral Nerve Society

Healthcare Provider Listing Sites

• The Institute for Functional Medicine

Bodywork Provider Listing Sites

• International Association of Healthcare Providers--those who train with these organizations tend to be holistically aligned but also highly technical

• Associated Bodywork and Massage Professionals