Free & Low-Cost Resources for Symptomatic Hypermobility & Related Conditions

Improving Healthcare Across The Mobility Spectrum in Santa Fe

Hypermobility is too little recognized as the sign that a body may need special kinds and degrees of care. Many people who are significantly hypermobile have sought diagnosis and effective care for years for a plethora of symptoms without any care provider realizing that their symptoms arise in relation to central causes relating to hypermobility, genetically or environmentally predisposed immune traits, and other clustered conditions. From the deep end, all this is easy to pick out upon hearing a new story, but to uninitiated providers there is usually little suspicion of what could cause such a diversity of symptoms--if there's time to hear them out to begin with.

I and others in Santa Fe would like to see the depth of awareness and level of care improve here and everywhere else for those with hypermobility and related conditions. The longer I spend with this group, the more I feel that it represents a bridge to improving medicine for all. Understanding the challenges of the hypermobile community may provide one inroad into better understanding how to improve health via greater physiological insight and treating for wellness when challenges are at a subtle level, rather than waiting until they explode. We "canaries in the coal mine" also provide clues as to environmental, industrial, lifestyle, and other factors whose harms we are only among the first to exhibit--the harms won't end with us. So we have a special role in advocacy--first for ourselves, but ultimately for humankind and the rest of the planet as well.

Summary & Quicklinks

Santa Fe Hypermobility Resource Group

A growing network of patients and professionals invested in working with hypermobility in all of its manifestations and implications. Our group aims to meet monthly via video or in person and is for anyone--diagnosed, seeking diagnosis, struggling and curious, or just interested in the topic. We're on Discord. We'll probably create a Listserv or something similar as well. We're organizing classes for 2026--pain care, Feldenkrais, pelvic floors, etc. We're members of The Ehlers-Danlos Society's Global Alliance, therefore hooked into a large network of information and healthcare providers, which aids our finding resources for you. Healthcare providers are especially welcome to connect--but see also below the opportunity to engage in the new Interdisciplinary Provider Group and Journal Club. Call or email for details and/or to receive invitations to meetups and classes: (505)-310-0662, sarah@lightspiritstudio.com.

Printable: EDS/HSD Resource Letter for Your Healthcare Providers

A printable letter you can take to your physicians to invite them to connect to the local journal club and to provide two concise pages of exceptional training resources relevant to EDS, HSD, and common comorbidities.

Interdisciplinary Provider Meetup and Journal Club

A group of local providers committed to improving care and awareness around hypermobility and other underserved health issues. Contact katie@layhoyahealth.com or sarah@lightspiritstudio.com. Interested healthcare providers from all conventional and complementary modalities are welcome.

Peer Support Network for Hypermobility & Complex Illness

I'm gradually gathering names of group members with deep experience navigating EDS/HSD and/or complex chronic illness and who are open to being contacted to help guide others. To protect members' privacy that list is private; with permission, I share just the contact information for parties who share your condition. Contact me to find out whether we have anyone experienced in navigating your areas of need: sarah@lightspiritstudio.com.

EDS New Mexico's Facebook Group and Resource List

The group has created a list of practitioners and other resources from all over NM. Membership is highly active.

Resources by Topic

A list of resources covering hypermobility and related topics: lectures, podcasts, articles, products, support organizations, etc.

Trusted Providers

This list covers a growing list of local providers and clinics that are more likely than random to be helpful in providing effective and aware care for hypermobility disorders and related conditions. Not everyone on the list is EDS or HSD aware, but they're there because I know them personally and trust their work or have heard too many good reports to leave them off the list--feel free to call me for personalized recommendations based on what kind of care you're needing. I also list some standout virtual and non-local clinics since frequently travel for diagnosis or care ends up being a good option for complex conditions.

Bodywork, Advocacy, Coaching, and Classes

I offer bodywork, advocacy, classes, and coaching for those with EDS, HSD, or tricky bodies generally--regardless of diagnosis-status. Enough said over here.

Migraine and Chronic Headache Resources Coming Soon

If you are hypermobile, migraine or chronic headache is more likely to be challenge for you than for others. I'm working on a lived-experience guide to everything I've learned getting my own migraines under control. Progress is great but slow. I'll gladly share partial drafts to put pressure on getting this project into a public form. Email to connect: sarah@lightspiritstudio.com.

*Previous Content of This Page: Hypermobility From a Bodyworker and Patient Advocate's Perspective

Information a lot of you have found useful on this page previously on this page is in the process of moving to Substack in hopes of aiding a wider audience and tidying up here--it won't just disappear: @fascianista on Substack

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